Shaina | General Chit Chat | Forum

Newest update:

Shaina just woke from her surgery yesterday and the Dr's removed her breathing tube. She is more alert than we've seen in weeks.

Thankle you all!!!

They want to keep Shaina on the ventilator for a few days, which means they are going to keep her sedated so she's not fighting against it. They are not sure if the tremors and vomiting she is having are from withdrawals or not, they think it might be something called ileus, where there may be an obstruction in her intestines because some of the medication she has been on slows the bowels down and would cause things to back up and come up the other end and she hasn't pooped in the last 4 days except for a small amount today, so they are going to do an X-ray/ultrasound of her bowels. The infectious disease Dr wants to make sure the yeast hasn't gone to her spine or her brain, so they would need to do a spinal tap, but it is too risky for Shaina right now due to her bleeding risk so the treatment for that, if it were in her spine or brain would be to increase the anti fungal and for longer duration. They have already increased it and will do the spinal tap when it is safer. They put the breathing tube back in the other day because she was having respiratory trouble. They are worried that she has narrowing of the airways due to inflammation or scar tissue from being intubated so many times. Instead of doing a scope procedure in Shaina's throat, they are going to give her a steroid which decreases inflammation when the breathing tube comes out and if we don't hear the noise that she was making before then we know it was inflammation. She accumulated fluid around the left lung again, so that chest tube was put back in today. They were not surprised by that considering how much her veins are leaking so they are just going to leave both tubes in even if they look better with a chest x-ray. The risk of infection is higher but outweighed by the risk of having to take them out and put them back in again. The wound care team will be coming by to address Shaina's skin breakdown. She put out urine again last night and the nurse braided her hair it looks so cute!

Poor little girl will be spending her birthday completely sedated. She will be 4 this coming Tuesday the 6th.

All the nurse's say they will do her hair and nails so we will be sure to get pics to show her when she wakes up.

Newest update : Today

Shaina was very stable during the whole operation, they were very happy. They cleaned her out again and looked at all the intestines. They previously cut out most of her large intestine. When they went back in after everything was cleaned out, they found another part of her large intestine that was unhealthy further up, so they had to take all of her large intestine out, aside from some of the colon that they left attached at the rectum. They put a stoma (opening in her abdomen) and attached the ileum (end of the small intestine) to an ostomy bag (poop bag) which she will have to have for about a year. After a year or so, she will have another surgery to attach the small intestine to the colon/rectum. They also had to replace her right chest tube once again. They are putting in a catheter to her radial artery now so they don't have to poke her poor little fingers every single hour for blood sugar, which has been happening for four weeks now. She is stable and hopefully this was our last major setback and now on the road to recovery.

Yesterday's update:

1400mls off in fluid and put out 73mls of urine @ 6am! Surgeons were just in and said to bump up the feeds. Best day yet!

They are starting to wean her off of sedation and are ready to pull out her breathing tube this weekend she is truly getting better and better everyday now!!

Thank you all for your prayers and everything else I love you all

buckallred said
Let us know when she can have visitors. . .  

She can have visitor's anytime but it would probably be best to wait till she is awake so she can say hi to everyone. I will let you know how everything goes this weekend. We're hoping this is the big weekend

So nothing new to update we're hoping to get the breathing tube out any day now.

But we did lighten up Shaina's room for when she wakes up.