Shaina

These are from Shaina she wanted to make some faces.

What a night last night...

We had to do our 3 month G-tube change for Shaina and when we pulled the old G-tube out she started to bleed and we attempted to put the new one back in with no luck, after an hour of trying with no luck we used our emergency folli catheter and call the hospital. They said bring her in so ER we went after a couple hours we finally got the pediatric surgery team in to get the new one in with success. Then we only had to wait for X-ray to come and make sure the G-tube was in the right place. Now we just have to play catch up for the meds and bolus that we missed last night.

But all is well we're home and Shaina is good...

That's scary! I'm glad she is ok.

Yes it was scary but luckily we have the staff at UC Davis to help take care of her. Im not sure if it's a sad thing or a good thing that everytime we go to the hospital we know someone and they come to check on Shaina

Ok we are back on the calendar for the transplant I'm not saying when cause I don't want to jinx us but we will be around for a while. Just trying to keep us all healthy before it's time.

I will keep everyone posted on it as days come close

Ok all the time has come transplant time is here. 0530 tomorrow morning we will be checking in to the hospital and should be going in at 0730 surgery should take about 4-5 hours to get us in and out.

Please keep our daughter and family in your prayers tonight and I will post up tomorrow when we are all good and in our rooms.

Thank you all for the thoughts and prayers during this season in our life's

Mike G said Ok all the time has come transplant time is here. 0530 tomorrow morning we will be checking in to the hospital and should be going in at 0730 surgery should take about 4-5 hours to get us in and out.

Please keep our daughter and family in your prayers tonight and I will post up tomorrow when we are all good and in our rooms.

Thank you all for the thoughts and prayers during this season in our life's

My thoughts and prayers are with Shaina, you and your family. Good luck!

Mike G said Ok all the time has come transplant time is here. 0530 tomorrow morning we will be checking in to the hospital and should be going in at 0730 surgery should take about 4-5 hours to get us in and out. Please keep our daughter and family in your prayers tonight and I will post up tomorrow when we are all good and in our rooms. Thank you all for the thoughts and prayers during this season in our life's   

Good luck Mike & Shaina, will be thinking of you and the family all day!

Thoughts and prayers

Keep up posted and love to Shaina and the whole family!

Thank you all, we did just fine Shaina is doing good with the new kidney and handling her pain way more then me kinda sad my 5 year old little girl can handle the pain more then me... but after all Shaina has been through I look to her for how to handle this pain.

I started walking this morning and as soon as I can handle walking more I'll get to go see her and I'll post a pic of the 2 of us in bed together.

Thank you all again we love you all!!

Glad to hear all is going well with you and Shaina!  We will be keeping you folks in our thoughts and prayers!

Here is the happy transplant family!!!

So I have been discharged as of today, finally got my pain under control with the right amount of main meds.

Shaina is doing really well also so we all should be going home soon. I will keep everyone updated on our situation as it comes along.

Mike G said So I have been discharged as of today, finally got my pain under control with the right amount of main meds. Shaina is doing really well also so we all should be going home soon. I will keep everyone updated on our situation as it comes along.  

Awesome Mike, sounds like great news all around!

So everything was going good until last night. Now Shaina is having a tolerance issue with her feedings she requires around 2500ml's of fluid/feedings a day that's broken up into 5 feedings over a 24 hour period and some of her anti rejection meds have to be 2 hours before or 2 hours after a feeding, feedings take 2 hours so it a big game we're trying to figure out, luckily we have 6 different teams of Dr's helping us out.

Hopefully we can get it figured out and get home and continue the healing process at home.

I will keep everyone updated from day to day. Thank you all and we all send our love to you all!!!

Our prayers are still going out to your family for a quick and uneventful recovery!

So still having a little throwing up issue and now a weird rash that appears and goes away and just trying to figure it out. All her meds cause side effects but because she has no immune system they just have to make sure it's not anything else.

Anything new I'll let you know

Keeping Shaina and your family in our thoughts Mike!  How are you feeling?

I'm good been off my meds for about a week already, drove for the first time in over 2 weeks to get our little one Canaan yesterday so he can spend some time with us and Shaina just to make it a little more normal for both Shaina and Canaan.

They took Shaina off the main culprit of the issues she is having and that's a good thing amd it seams to be doimg better and may lead up to us going home soon... Hopefully!

Things are going good for the most part we are still here at the hospital but are hopefully going home tomorrow if she is still doing well

So no go today Shaina is still having hypertension issues so they are changing some meds and amount to free water and sodium she is getting to see if her BP gets better. That's the last thing that's keeping us here.

They told us 7-10 days after transplant and we'd be home... ha we knew better then that

Hoping you all go home soon. Please let me know if you need anything.

Going home today just got to get all the discharge stuff taken care of first.

$1,181.3 a month for meds... wholly crap thank goodness for insurance